4 year bilateral cochlear implant review

5 06 2016

I’ve just had my 4 year review of my cochlear implant hearing. My hearing is a straight -20db after turning down the volume a little, and it feels natural now to have such super hearing.

I work from home a lot these days; I can hear the neighbours on one side when they argue and the neighbour’s TV on the other side. Hearing well is not always a good thing! My new hearing dog Bailey has a very loud bark so all in all, it can get very noisy sometimes! This “overload” of sounds has been the hardest thing to get used to and I do like to take the processors off occasionally so I can get some peace!

I pick up the phone now and again when it’s an emergency or I’ve had to make a call and there isn’t a hearing person around to ask. Using the telephone takes a lot of confidence and interestingly the most difficult ones are where I had to phone people in Southern Ireland and struggled with the accents (I’m Northern Irish so didn’t expect this!), the easiest ones are where I listened to a digital voice and had to take down a pin number (and got it right! Wowser!).

audiogram 2016

Red: My hearing in 2016 with bilateral cochlear implants

Blue: My hearing in 2010, before receiving cochlear implants

 

 

hearing test 2016CUNY lipreading test – 24 sentences of varying length and complexity presented in auditory and visual condition – lipreading with sound

BKB sentence test – 32 short sentences of simple syntactic structure presented in auditory alone condition

 

I’ve been able to converse with a relative stranger when she was talking to me from the next room, because her voice was loud and clear enough for me to follow, and she wasn’t speaking too fast. I take great pleasure in understanding public announcements on the London underground, on trains, and in train stations.

The most surprising sound was water dripping from the ceiling to the kitchen floor when the builder forgot to secure the radiator flow upstairs – I was in the lounge! I was able to react immediately and run upstairs to alert the builder.

Another sound was (hearing this from the lounge again) water dripping from the kitchen sink into a bucket below, inside a cupboard. It sounded like a double popping sound. Investigating this, I watched – the first pop was the water drop hitting the surface of the water, the second pop was the water bubble bursting. Awesome!

hear speech

Being able to hear sounds well has made me much more relaxed about communication, and I now understand why hearing people don’t really comprehend the complexities of deafness. When you can hear well, it is so effortless and easy, it’s like breathing. Many hearing people don’t understand that hearing well is not just about volume. It’s about clarity, understanding, processing the sounds that you hear and knowing what a sound is, being able to translate heard sounds into speech and making sense of them.

The most frustrating thing is I still need communication support as many speak quickly and mumble, many environments are too noisy and have poor acoustics, and I am just not used to processing sounds into speech. I will always be deaf. But hey, that’s okay.

Some people speak too fast for me to listen to them and decipher what they’ve said, or they are simply too far away – lipreading is often a much easier tool for me to use. I had some people visit recently to give me quotes for roof repairs, and they all had (hilarious) cockney accents. Listening and lipreading, I had the pleasure of understanding every word they said and trying to keep a straight face at how they spoke. Recently I’ve travelled to the Midlands and the north of England, Paris, Gibraltar, Granada, Barcelona, Budapest, and Qatar – I have enjoyed experiencing and listening to all these accents and easily understood everyone I spoke to, without worrying about whether I would be able to or not. Communication is now enjoyable, and that has been a truly amazing gift.

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18 responses

5 06 2016
Annie weston

Thank you I have a lot of those feelings so now I know it’s just not me

6 06 2016
Paul

Our original implants were about the same time in 2010. Hearing with just the one Ci (deaf in both ears) the use of the telephone has gone from a palm sweating, apprehensive, experience to a pick up the phone and do it event.
Yes, the hearing have no realization of how “easy” communication is when there is no, or very little, loss.
Welcome to the soundy world!

6 06 2016
Sid and Michele Phipps

Very interesting journey.

I have one implant which was done about 8 years ago. I asked about a second one, but the NHS thought that I didn’t qualify. I have toyed with the idea of going privately, but it is so expensive.

I am very glad to hear that you are doing very well with your 2 implants.

Regards,
Michele Phipps

Sent from my iPad

>

6 06 2016
Tina

Hi Michele

Try pushing the NHS. I did, and a few others have been successful too.

6 06 2016
cem4881

I am sure one of the strongest arguments is better speech processing.

6 06 2016
cem4881

Hi Tina! I too, will always be deaf, but hey, it’s so much better. A lifetime better. I don’t work from home, I work in a noisy room tutoring hearing people in Math at the local community college. I was doing this with my old, worn out hearing aids and have continued without stopping, and have in a natural, spontaneous way changed the style of my tutoring. It is more interactive now, with my asking questions to prod my tutees into thinking for themselves, and less tiring, because I frequently can understand what they are responding without having to lip-read. It is just knee-knocking amazing. I still end up wiped everyday if only because I am still putting the same intense energy out as before but getting better results. I am very lucky to have this job, and am pleased to report that my position is secure! They frequently have new tutors sit at my desk to observe! But this has been going on for quite awhile. I am still using the FM, hard wired into the Harmony’s.
And with that FM, I have been listening to a geography professor, an older guy speaking the King’s English. It is amazing how much I can hear without lip-reading. Amazing, amazing. I never ever ever take all this for granted. I get so angry about the difficulty of getting that second implant that some people are having. There should be no problem about it.
When the day is done, I still love yanking the ears off and enjoying the friendly inner sounds that always accompany me. I tell myself I should keep them on. Maybe, maybe, but tomorrow, tomorrow, and tomorrow I will get cracking and do more practicing. I justify my laziness saying to myself, I do enough at work, but, it would be nice to completely lose my reluctance to use the phone.
I haven’t been to the audie for awhile, so don’t know what my levels are. There is no convenient bus service to Sacramento anymore so I have to rent a car to get there. I am going to start my research into getting the Naida’s. I was supposed to be eligible for upgrades after five years, and it will be five years next year for the second one. But with ACA, rules have changed. Don’t really know what to expect. My audie said to go talk to AB insurance people. I will be doing that soon.
It was good reading up on your latest news! Cheers!

7 06 2016
Tina

It’s good to hear your progress, yes I remember you saying you were all wired up with so much wire and I had a wonderful image of you walking around your classroom wrapped up in wire!
It is certainly much easier now to ‘deal’ with the card we’ve been dealt, feeling less frustrated and tired with it all. I don’t regret this journey for 1 second.

7 06 2016
cem4881

Did you ever get your FM?

30 06 2016
Tina

Yes I got 2 Roger Phonak pens and don’t use them as the Harmony gives me bad feedback. The audiologist says I need to upgrade my processor to cut out feedback and I’m still waiting. I’m trialling the Comfort Audio which arrives tomorrow but I suspect feedback will still be an issue.

1 07 2016
cem4881

Oh no! I have the Comtek which is US made. I think. Can’t tell these days. Tell me how the Comfort Audio works. When will you be eligible for the Nadia?

1 07 2016
Tina

The Comfort Audio works in a similar way http://www.comfortaudio.com/us/
I’m on a waiting list and they can’t tell me when I get to the top, just that I’m on it. It could be another year or two, it could be next month, who knows?

1 07 2016
cem4881

My Harmonies are still working very well, and very happy about that. In 2010 when my right ear was implanted I was told by my audie that I would be eligible for an upgrade in 5 years. But after my left ear was implanted in 2012, I decided to wait another 2 years and get both upgrades at the same time. Hopefully ACA doesn’t mess things up for me.
It looks like you really want wireless. For me the FM is worth the $1000 out of pocket expense and all the wires! I would be lost without it at work!

7 06 2016
GETEILT: 4 Years bilateral cohlear implant review |

[…] über 4 year bilateral cochlear implant review — I look so I can hear…. […]

28 07 2016
Scott

I just wanted to say thank-you for sharing your journey. I have just passed the big 5-0, and my hearing is rapidly deteriorating. I know it is primarily genetic, and like my father I will have profound loss in a few years. I know that it won’t be long until I am looking at a CI, and I can’t tell you how helpful it is reading about your experiences. It is so easy to despair, and the encouragement of your blog gives me a reason to try to stay positive.
My family is also from Northern Ireland, so I feel some kinship as well 🙂
A quick question – do you have any recommendations on learning to lip read? I live a few hours from the closest city (Canada), so taking classes is not an option.

28 07 2016
Tina

Hi Scott

I’m glad to have been of some help! The CI is amazing, you will have so much to look forward to.

I’m a lipreading teacher and know what’s out there. I’d say the best resource is this one, set up by an ATLA qualified lipreading teacher. There are a few other sites online but they’re not worth your time. A useful way to practice is to watch the news on TV with the sound off. Subtitles on would help in the beginning and you can try turning off the subtitles to make it more difficult.

26 08 2016
Jacob Phils

Actually, I am looking forward with this also. There is always pros and cons with this type of situation but at least you are still normal.

7 05 2017
Patsy

Hello Tina-this has been an amazing journey you have let us have the privilege of sharing-thank you.
My Grandson,who is three weeks old,has been diagnosed as profoundly deaf.How do you feel for CI for infants?

8 05 2017
Tina

Hi Patsy
There is a ‘window of opportunity’ for infants, they do much, much better than adults if they are implanted before 3 years old. I gather that when implanted so young, recipients grow up to handle hearing loss like a boss, and can function just like hearing people. I wish your grandson all the best!

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