C.I.B.O.R.G. D.A.Y.

27 02 2010

It’s my big day. Bye bye crappy hearing aid. Hello bionic ear. I’m calm. Still asking myself, Am I REALLY deaf enough for a cochlear implant?

THURSDAY 7AM

I got to the hospital and sat in reception, listening to my iPod with my last few minutes of bilateral hearing, until they called me upstairs to the B ward at the Royal National Throat Nose Ear hospital in London. I went through all the prep with 2 nurses – a form detailing any medical problems, and they took MRSI swabs, my blood pressure, and temperature. I met with the surgeon who marked my neck on the left side, he said the surgery should take about 2 hours. The anaesthetist also came to talk to me, then my friend Karen arrived. I chatted with her for the rest of the morning as my surgery was scheduled for 1pm.

I was totally calm and remained so for the whole CI experience – I think this was because I had done so much research and watched a video of CI surgery, and I had the courage of my convictions, I knew I was doing the right thing. This morning, on my way in, I tried listening to my iPod with just my left ear, and I couldn’t even follow the melody of my favourite U2 songs, whereas I was easily able to do this with my right ear. Rock on!

I was given a hospital gown, stockings to stop blood clots, and plastic knickers(!). Wow, this was a whole new fashion thing going! I eyed them nervously until the last minute, the nurse had to almost force me to get all that gear on. The stockings made me laugh as they have holes in the bottom of them … to tickle my feet when I wake up maybe?

THURSDAY 1PM

I walked upstairs to the operating theatre’s recovery room with a nurse and hopped onto a bed. I was to get a general anaesthetic. The nurse covered me with blankets and hooked me up to monitors, with monitor pads stuck to my chest. The anaesthetist had a huge syringe which looked like it was full of milk. He gave me the anaesthetic and looked at me …. I looked at him … he looked at me .. I started laughing and said “It’s not gonna work is it?!” then the next thing I remember is waking up, I was wide awake very quickly and they took me back to the ward with a big grin on my face. It was the best sleep ever and I wanted to do it again! My surgery had taken 4 1/2 hours.

THURSDAY 6PM

I felt very happy and wide awake. David had arrived and he and Karen had been waiting for 4 1/2 hours, they were worried as they had been told surgery would be about 2 hours. I had no pain at all apart from over the ear where the bandage was too tight – it felt as if my ear had been bent over before being bandaged up. I asked the nurse to loosen it for me and that helped a little.

The surgeon came to see me, Prof Saeed from Manchester, who has 15 years experience of CI surgeries, and I am his 294th CI patient – so that’s a very experienced CI surgeon! He said all 16 electrodes are working and the operation was perfect, he was totally thrilled. He asked me to close my eyes and smile, to check that my face is working ok. I then had dinner, I was starving by then, and I discovered that I can still taste food – I had been told I might lose my sense of taste after surgery. I showed the internal part of the cochlear implant to Karen – I had a dummy one with me – and my nurse was absolutely fascinated by it. From the moment Karen and David arrived, I didn’t stop talking, and I was chatting to Amanda and a few other friends via my Blackberry, so I feel as if my hospital stay has been a very enjoyable social event with a good sleep thrown in!

THURSDAY 11PM

I tried to settle down for the night but there were too many pillows, the ward was too warm, my stockings were tight, the bandage was hurting, the tinnitus was roaring like a freight train in my new CI ear. A nurse spoke to me about my pillows but it was dark on the ward and she is dark skinned ….. I gave up at that point! Too tired to explain good communication tactics! I eventually got to sleep after 2AM.

FRIDAY 6AM

A nurse poked me awake – grrr – to take my blood pressure and temperature. Another nurse came to take the bandage off and she pointed out a big swollen bruise on my chest which I hadn’t noticed. Must have got that when the surgeon had to put his foot on me to keep me down …

I had breakfast of cornflakes, tea and toast. I went back to sleep and woke to see Karen there. The nurse removed the tubes and needles from my hand and we headed off to the xray department, where they xrayed my head. The xray is to check the CI has been put in the right place. I collected my discharge note, sick certificate, and confirmed my checkup date. I got dressed and had a quick lunch, then we left for home.

FRIDAY 1PM : Home 🙂

I was able to walk and my balance was good, but I felt quite unreal and had to walk slowly. I wore a pashmina to cover up the crazy hair, I’m not allowed to wash it for a week. The pashmina worked well as it was light and comfortable. The scar looks good, it’s a lot smaller than I thought it would be, and my hair will cover it anyway. I think it looks like a very professional job.

There isn’t any pain in the ear itself. The ear is numb and it’s sore going down the neck, and I have a sore throat/jaw/shoulders/head, bruises on the back of head and chest, it hurts to turn over or to get up, I feel like I’ve done 500 situps, but overall, the operation is a breeze really, and I wouldn’t have any qualms in going through it again for a 2nd CI if I go for that. I’d get to have another go at the drugs and pants thing. I think the worse thing was the tinnitus yesterday, I didn’t expect it to get worse, and to the level that it did, of a freight train, so that was a shocker.

What I found difficult during my hospital stay was communication with the nurses and surgeon – they were foreign and I couldn’t lipread them. Luckily, David can sign so he translated for me. It’s a shame the nurses and doctors don’t get deaf awareness training. It really is so important, so that the patient has a better hospital experience – it’s not just about the medical support, it’s about the holistic support. The psychological aspect is important as well. It’s like yin and yang. I had to constantly ask nurses to repeat, to look at me when speaking, to write it down. It was so frustrating and tiring.

SATURDAY

I woke up to an amazing thing …. silence. No tinnitus! It has been coming and going today but it’s quieter than yesterday. At this moment, as I am writing this, there is silence. It is bliss. I have had constant tinnitus all of my life and it really sucks, but you can’t do anything about it except learn to live with it. I managed to get 7 hours sleep and I feel much more clear headed today. Physically I am really aching and don’t feel up to doing anything. The numbness on the left side of my tongue has gone away and my lips are becoming less numb. I’m amazed at how much better I feel.

I’m really happy because it was a good surgery and the surgeon was thrilled, and by having the CI on the worse ear, I had nothing to lose and so much to gain. It really helped to have such great support throughout from my friends that have CIs, they have been through it themselves and are great at offering reassurance and advice. My hearing dog Smudge was totally spoiled when I was in hospital, he really enjoyed all the fuss, new toys and treats, and is probably wondering when I’m going away again!

I’m so unbelievably TIRED, but I am a very happy bunny! For now, it’s back to the sofa for tea and chocolate biscuits…





Deaf = not old and boring

11 02 2010

Check out this new hearing aid concept from Designaffairs Studio in Germany. It’s different, unique, and very refreshing. Perhaps too innovative for some, though. This hearing aid is plugged into a large hole in the earlobe. Eww. They have designed an additional plug to add extra amplification.

At least some designers are heading in the right direction, they have the right idea – hearing aids are not just for old people, are they?

The RNID have come out with some new figures. They said the current 9 million deaf and hard of hearing people in the UK will increase to 13 million by the year 2014, due to an ageing population and the iPod generation becoming deaf. Scary figures. I’m expecting hearing aid designs to be revolutionized. Hearing aid design today is all talk and no action.

My personal opinion – I love the idea but I would not want to put a big hole in my earlobe. I would happily wear as this as an earring though. Good for the girls, not so good for the boys.

Images: Designaffairs





Bombs and bangs

7 04 2007

Is it a rock? Is it an old doorbell? No, it’s a landmine. Kyle sent this photo from the Libyan desert where they are drilling for oil, these are just left as found. Oooerr!

In Northern Ireland, where I grew up, bombs and bomb scares were commonplace.

BOMBROBOT.jpg

The Irish have a different way of dealing with them than the Libyans 😉
(The robot has since filed a deafness claim….)

When the bombs fall, and then all is silent, the lives of the survivors may also be silent. Bombs are very loud. Noise levels as high as 110 to 130 decibels have been documented in bombing practices. (Other war-related sounds can be painful, such as shotgun blasts or the sound of jet planes taking off from as little as 100 feet away). Being exposed to sound that loud, even once, can cause hearing loss. Any sound above 85 decibels is considered a potentially damaging threshold.

During World War II, many people acquired hearing losses due to exposure to bombing raids. In Northern Ireland, many people have gone deaf from the noise due to bombing. Bombing exposure may be responsible for at least some cases of sensorineural hearing loss (SNHL) in babies born to mothers who have lived through war. During the war between Iran and Iraq, more children were born with unexplained hearing losses, and their mothers had been exposed to bombing. Other terms for the effect of bombing on ears are blast injury deafness and acoustic trauma. Explosive sound can damage all parts of the ear (it can tear membranes and move bones around), leading to either temporary or permanent hearing loss.

Did you know, a man’s hearing was saved by his Apple iPod earphones in the recent London terrorist bombings! Oh yeah, and you know, one of the great advantages of having a hearing loss is that I can listen to my iPod all day, as loud as I want, as my ears are wrecked anyway! It’s not advisable to use earphones for long periods at loud levels.





Ipods and hearing aids

21 02 2007

After changing my lifestyle, I thought about re-introducing music. I’ve been in musical limbo for eight years. Music has made my daily commute much more colourful and fun! I got an iPod and direct audio input shoes with leads. It wasn’t quite so straightforward though to get the system set up correctly, so here’s how I did it.

You have two options when you purchase audio input shoes. You can get shoes which (1) work with the hearing aid microphone or (2) work without the microphone and exclude all other external sounds. If you have two hearing aids, remember to buy two shoes! The lead is available in different lengths and colours.

Ask your audiologist for a ‘T’ or loop program, the listening level can be boosted to capture more sound. The hearing aid may also need to be switched on ‘internally’ by the audiologist. You will be asked if you want the loop to work with or without the microphone.

Because you are listening to music being directly piped into your ears, you will hear it more clearly and loudly than with hearing aids alone. Electronic feedback is sometimes picked up – when the tube stops, at the back of a bus, on a train when passing electrical overhead wires.

Now, onto the software. iTunes software is free to download to your computer. It’s basically an online shop, with songs usually costing 79 pence, or you can purchase albums, podcasts, movies, TV shows, audiobooks and games. Purchased items are downloaded into your library which is a file on your computer. You plug your iPod into your computer’s USB port and transfer files to your iPod, as many or as few as you like – including photos.

Just jumping for joy now! Oh yeah, and running too…. I also got a Nike and iPod Sport kit. This kit turns your iPod into a personal trainer by putting a sensor in your shoe and a receiver on your iPod nano. It’s not necessary to buy the special Nike trainers, you can attach the sensor to the shoe – just check that it records the impact of your foot correctly. You will be able to see and hear feedback on your run time, distance and pace, along with your favourite music. When you get home, plug your iPod into your computer and sync your iPod with nikeplus.com where you can view your runs and challenge other runners around the world.

I introduced a friend to the iPod – it was his first time, just check out that happy face!