ABI – Auditory Brainstem Implants

7 05 2012

A query came in from a reader -

Auditory brainstem implants is finally going to become a reality for me,  I’m on the urgent list for another MRI. The ABI surgeon is currently being registered under a neurosurgeon for the procedure later in the month.  I don’t have NFII but have had meningitis and 3 failed CI’s within 6 months post implantation, I would be interested to know if there is anyone that is also in the NT (Non-Tumour) group who wouldn’t mind sharing their experience, the journey, then the ABI and a whole new and difficult beginning all over again.  How successful is it for them etc and if they wanted to share about the surgery and activation, how many days re-admission to hospital did it require, did they require a further aesthetic pre-activation, such as the children have? CJ

Please post or link to ABI users if they can advise…. thank you.

CJ, you could check out the following;

House Research

Calum’s ABI

Amazing Amelia

facebook.com/tigersharkdude

facebook.com/rachael.morris.104

Facegroup group – ABI Technology

The Auditory Brainstem Implant: One Child’s Success Story





From Us To You

1 05 2012

Do you remember how hard it was when you were younger and deaf? Before you found your way in life? Before you became successful?

Or are you young and deaf, and you’re wondering how you can be successful, but don’t know if this is possible.

Check out Ted Evan’s wonderful film which looks at deaf role models. It’s very well done indeed. Very thoughtful. Very moving. It’s film-making at its best. Nadia is a superstar. Larry actually made me choke up and …. um…. cry :)

Watch the film and find out why …. and tell us about your role models.





A Call for Help Gets Answered

27 04 2012

FOR IMMEDIATE RELEASE

Global, April 27, 2012

A Call for Help Gets Answered

 

CochlearImplantHELP.com, a new and comprehensive website aimed at helping current and future users of cochlear implants and their families, announces the website launch today.

A need was identified to help others better navigate their journey to receiving a cochlear implant, whether for themselves or for a family member such as their child. And cochlearimplantHELP has been created to help them wherever they are on their cochlear implant journey.

Whether just starting to learn about cochlear implants or a seasoned cochlear implant user looking for ways to connect to a favorite piece of electronic equipment, cochlearimplantHELP has what you need.

Please take a few moments to peruse the site, and feel free to link to it or share it freely. CochlearImplantHELP.com can be found on the World Wide Web at http://www.cochlearimplantHELP.com

Press Release 04 27 2012





Coffee cup thoughts

13 03 2012

Over my morning coffee, I thought about how much I am enjoying being able to hear now, even though some days I have to bite my tongue when it gets too loud. Last night I made a cup of tea in the kitchen and I could hear when the kettle boiled SSSSSSSSSSSSSS and it was ready to pour.  I listened to a sound PLOP-PLOP-PLOP-PLOP-PLOP-PLOP and I knew straightaway that the sound was water – at first I thought something was dripping but then it took me a second and I realised – aha! – it was my dog drinking from his water bowl.  I went up the stairs and I heard SW-SW-SW-SW-SW-SW-SW-SW-SW-SW-SW-SW-SW …. my dog padding behind me on the carpet.  It was amazing and reassuring to know that he was there, just by hearing him behind me. He disappeared from view and I could hear this skr-skr-skr-skr-skr-skr-skr-skr-skr-skr-SKR-SKR-SKR-SKR-SKR-SKR-SK-SK-SK-SK-SK-SKR-SKR-SKR-SKR-SKR-SKR-SKR-SKR-SKR sound, I was sure he was scratching himself and put my head around the door to check, and hey presto, I was right! I could also hear someone talking downstairs and wondered with a jolt if someone had walked in off the street, then I realised it was the TV chattering away – this surprised me as it was on so low that it was just audible.  All these little things made me smile.





Improving pitch discrimination

28 02 2012

I’ve been taking part in a clinical study over the last few months on factors affecting audio-perception in patients with cochlear implants.

This study was conducted to determine if cochlear implant sound processors can be adapted to improve speech perception.  My processor program on my older processor (now two years old!) was changed to improve pitch discrimination, based on my discrimination abilities during testing, and evaluated with speech perception tests.

During initial testing, the Hearing In Noise Test (HINT) was used. Two lists of ten common, simple sentences (such as “The weather looks good today”) were used in quiet and noise with sentences administered at +10 signal to noise ratio, to give a baseline level of my ability to discriminate.

During the first session I undertook a pitch discrimination task. Two sounds (beeps) were played, and I was asked to say which sound is higher in pitch. Each sound is a separate electrode on my implant being stimulated, and this was continued for all electrodes to work out which ones give the clearest pitch, and if there are electrodes which sound the same.  This went on for 2-3 hours … uggg! I had a new program added to my sound processor to try out, based on the pitch task, and I used this all the time. This meant I had about 6 electrodes switched off and a simpler map.

During session 2, one month later, I underwent the same speech perception tests with the new program and then was given a different program to try based on the results of another pitch discrimination task.

During session 3, one month later, I underwent the same speech perception tests with the latest program and then asked which program I preferred out of the two new programs and the original one that I started with.  I couldn’t tell that there were any major differences between them, they were slightly different in the quality of the sound but I could have lived with any of them. However, the speech discrimination tests told a different story …

HINT testing in quiet :

Bilateral % Left ear only (older CI) %
Nov 2011 57 Dec 2011 48
Dec 2011 84 Feb 2012 70

Out of 26 in this clinical trial group, 4 saw an increase in their speech perception scores. It is likely that a simpler map allowed my brain to ‘sit back’ for a while, take the time to absorb sounds through a simpler map, then start again refreshed. :)

Now, it’s onwards and upwards with more auditory verbal therapy, as I’ve purchased a course of AVT from Pindrop Hearing on Harley Street. This course is ideal for hearing aid users but not quite as effective for cochlear implant users. This new version of LACE training has British accents but the regular testing is done with US accents, as the comparative data is pulled from the US database of other LACE users.

I’m willing to try anything to increase my speech perception scores, so watch this space. I wonder if I will ever be able to hit 100%?





Eyes wide shut

27 01 2012

Photobucket

I booked a third AVT session (Auditory Verbal Therapy) and Rashed came along to watch. My therapist Jacqueline took me through the Ling 6 sounds, saying each sound and repeating it, then giving me pairs, then sets of three. I was fine with AH, SH, S, but I got confused with the set of EE, MM, and OO. Need more practice!

We then moved on to closed sets of words. This means that Jacqueline will give me words that I expect to hear. I chose numbers between one and ten. Jacqueline sat behind me (as she knows I can lipread round corners) and gave me random numbers. I repeated them all back to her. I got them all right, but confused ONE and NINE … but I got that right after a little practice.

We worked on another set; transport. Jacqueline threw words at me, such as BUS, TRAIN, BICYCLE, TRICYCLE, AEROPLANE… out of 20, I got them all right except for two or three. I practised recognising the word by thinking about the sound of the word and not the shape. Being a lifelong lipreader, I automatically figure out what a word is by thinking about what makes sense and what doesn’t within a word and within the context of a sentence, what I am expecting to hear, and thinking about the shape that fits.  It’s hard to break the habit of a lifetime. But thinking about the sounds, it was easier to understand what I was hearing.

We moved on to short sentences, and I surprised myself by being able to understand what had been said. Rashed sat opposite me and gave me some sentences, I listened and repeated these after him, then I responded to questions. Jacqueline joined in, and before I knew it, we were having a three-way conversation. With my eyes wide shut!

(Someone fell off his chair in shock)





Ryland uses the Advanced Bionics Neptune “swimmable” processors!

14 12 2011







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